ADVOCACY FOR CHILDREN

Privacy Policy European Academy of Paediatrics (EAP)

Last updated: November 2025

1. Introduction

This Privacy Policy explains how the European Academy of Paediatrics (“EAP”, “we”, “our”, “us”) collects, uses, stores, and protects personal data when you visit our website eapaediatrics.eu or interact with us online.


We are committed to protecting your privacy and ensuring that your personal information is handled in accordance with the General Data Protection Regulation (GDPR) and all applicable European data-protection laws.

By using this website, you agree to the practices described in this Privacy Policy.

The Data Controller responsible for processing your personal data on this website is:

European Academy of Paediatrics (EAP)
A Section of the European Union of Medical Specialists (UEMS)
Rue de l’Industrie 24
1040 Brussels
Belgium

 

Questions regarding this Privacy Policy or privacy rights may be sent to:

[email protected]

3.1 Data You Provide Directly

This includes personal data submitted when:

 

  • Contacting us through a form or email

  • Subscribing to newsletters

  • Accessing the National Delegate Area (see below)

 

For users of the National Delegate Area, we collect additional profile information:

 

  • Name, title, and institution

  • City and country

  • Professional contact details (email, phone)

  • Society representation and membership type

  • Term start and end dates

  • Working Group assignments

  • UEMS status (visible to the member; editable only by Administrators)

  • Profile photo (optional)

  • Biography and languages (optional)

  • Per-field visibility settings chosen by the user

 

Access to the Delegate Area is by invitation only. All accounts are created by EAP Administrators. All profile fields default to the most private setting (“Only me”) to ensure data protection by design and by default.

3.2 Data Collected Automatically

When you use our website, we may automatically collect:

 

  • IP address

  • Browser type and version

  • Device type and operating system

  • Pages visited, time spent, and navigation patterns

  • Date, time, and referring website

 

This information helps us secure and improve our website.

3.3 Cookies and Tracking Technologies

We use cookies to support essential website functionality, improve user experience, and analyse site performance.

You can manage or disable cookies through your browser settings. Disabling non-essential cookies may affect functionality.

3.4 Google Analytics

We use Google Analytics, a service provided by Google LLC, to understand how visitors interact with our website. Google Analytics collects information such as:

 

  • Pages viewed

  • Time spent on each page

  • Browser and device details

  • General geographic region (non-identifying)

 

We have implemented:

  • IP anonymisation

  • No advertising features or profiling

  • Limited data retention settings

 

You may opt out by adjusting your cookie preferences, disabling cookies in your browser, or using the Google Analytics Opt-Out Browser Add-on:
https://tools.google.com/dlpage/gaoptout

 

Where relevant, data may be transferred outside the EU, with safeguards such as Standard Contractual Clauses in place.

We process personal data to operate our website, communicate with users, and support the activities of the European Academy of Paediatrics (EAP). The purposes for which we use your information include:

4.1 General Website Use
  • Responding to enquiries submitted through our contact forms or by email

  • Managing newsletter subscriptions and sending updates (where consent has been given)

  • Maintaining, improving, and securing our website and digital services

  • Generating anonymised statistics for website performance and usage analysis

  • Ensuring compliance with our legal obligations

  • Protecting the website from misuse, fraud, or security threats

  • Providing access to member-only documents or materials where relevant

Personal data collected through general website use is not shared for commercial purposes.

4.2 Additional Purposes for the National Delegate Area

For users invited to access the secure National Delegate Area, we process personal data for the following additional purposes:

 

  • Providing secure, role-based access to the Delegates Directory, Working Group materials, and meeting archives

  • Allowing each delegate or representative to update and manage their own professional profile

  • Supporting internal governance processes, including verification of UEMS status and managing membership roles and terms

  • Facilitating communication and collaboration within Working Groups, councils, and committees

  • Respecting the user-selected visibility settings that determine who may view each profile field

  • Maintaining system security, including audit logs of login activity, profile updates, administrative actions, and permission changes

 

Data collected within the National Delegate Area is used exclusively for internal organisational purposes and is never used for external marketing.

 

All profile fields in the Delegate Area default to the most private setting (“Only me”) to ensure data protection by design and by default.

The following GDPR legal bases apply to processing personal data in the National Delegate Area:

 
Legitimate Interests

We process personal data to operate a secure internal member portal, maintain accurate delegate information, support Working Group collaboration, manage terms of service, and fulfil EAP’s governance responsibilities. This processing is necessary for the functioning of EAP as a professional medical organisation.

 
Contractual Necessity

Certain processing is required to provide access to the portal and enable representatives to perform their official roles within EAP structures.

 
Consent

Consent applies to optional profile fields, profile photographs, and any field for which the user chooses a visibility setting broader than “Only me.”
Users may withdraw consent at any time by adjusting their profile visibility settings or contacting us.

We may share your data only with:

 

  • Technical service providers (e.g., website hosting, email platforms, analytics tools) who process data strictly on our behalf and under confidentiality agreements

  • Email newsletter providers (if used), solely for sending communications you have opted into

  • UEMS or EAP-affiliated bodies, only where necessary for fulfilling organisational obligations

 

We do not sell, rent, or disclose your data to unrelated third parties for marketing or commercial purposes.

Where third-country transfers occur (e.g., a US-based email service), appropriate safeguards such as EU Standard Contractual Clauses (SCCs) are applied.

 

Within the secure National Delegate Area, visibility of each profile field is determined by the user’s chosen settings. Users may select:

 

Only me / Delegates only / Admin only / Everyone in portal

 

UEMS status is visible to the account holder and, depending on internal policy, may be visible to other authenticated users. Only Administrators may edit this field.  Personal data from the Delegate Area is not shared externally, publicly, or commercially.

We retain personal data only as long as necessary for the purposes for which it was collected.

Typical retention periods:

 

  • Contact form submissions: up to 12–24 months

  • Newsletter subscriber data: until you unsubscribe

  • Technical logs: typically 30–180 days for security monitoring

  • Member-account information: for the duration of membership or service provision

 

When data is no longer required, it is securely deleted or anonymised.

 

Data stored in the National Delegate Area is retained for the duration of the delegate’s term, representation period, or active involvement with EAP.

 

Member area:

After a role concludes, the account may be:

 

  • Deactivated – hidden from the directory but retained for governance records, or

  • Deleted – optional profile data, photos, and visibility settings are removed; minimal records may be retained as required for organisational documentation.

 

Security and audit log data (such as login history or profile-change logs) may be retained for up to 24 months for compliance and security purposes.

If you are located in the EU or EEA, you have the following rights regarding your personal data:

 

  • Right of access – to request a copy of your data

  • Right to rectification – to correct inaccurate information

  • Right to erasure (“right to be forgotten”)

  • Right to restrict processing

  • Right to object to processing based on legitimate interests

  • Right to withdraw consent at any time

  • Right to data portability – to receive your data in a structured format

  • Right to lodge a complaint with your national Data Protection Authority

 

Users of the National Delegate Area may:
  • Download their own profile data in a structured, machine-readable format

  • Update or restrict visibility of individual fields at any time

  • Request correction or deletion of their data

  • Request deactivation or removal of their account following the end of their term

  • Object to processing based on legitimate interests where applicable

 

EAP Administrators will respond promptly to rights-related requests using internal tools designed for GDPR compliance.

To exercise these rights, email [email protected]

We implement technical and organisational measures to protect your data, including:

  • Encrypted website connections (HTTPS)

  • Access controls and password protection

  • Secure hosting infrastructure

  • Regular website updates and security monitoring

  • Restricted access to personal data within EAP operations

 

The National Delegate Area is protected by multiple security measures, including:

 

  • Password-protected access using individual accounts

  • Optional multi-factor authentication

  • Encrypted sessions and secure cookies

  • Privacy-by-default settings for all profile fields

  • Role-based access controls ensuring users see only what they are permitted to see

  • Audit logging of key events, such as profile updates and administrative changes

  • Regular security monitoring, backups, and vulnerability mitigation

  • A defined incident-response procedure that includes GDPR-compliant breach notification

 

All data is hosted on secure systems using encryption at rest and in transit.

 

No system is completely risk-free, but we are committed to maintaining a high level of security.

If data is processed or stored outside the European Economic Area (EEA), we ensure that adequate safeguards are in place, such as:

 

  • Standard Contractual Clauses (SCCs)

  • Equivalent privacy protections

  • Transfers only to trusted service providers

We may update this Privacy Policy from time to time to reflect legal or organisational changes.
Any updates will be posted on this page with a revised “Last updated” date.

European Academy of Paediatrics (EAP)
Rue de l’Industrie 24
1040 Brussels
Belgium
Email: [email protected]

Contact

For questions, concerns, or requests related to this Privacy Policy or your personal data, please contact:

Your Enquiries Are Welcome

We will respond to you by Email

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Core-MD Project

Coordinating Research and Evidence for Medical Devices (CORE-MD)

New ways to test high-risk medical devices.

 

Manufacturers of medical devices need to test their products before being allowed to market them. Specifically, they require clinical data showing their medical device is safe and efficient. In this context, the EU-funded CORE-MD project will translate expert scientific and clinical evidence on study designs for evaluating high-risk medical devices into advice for EU regulators. The project will propose how new trial designs can contribute and suggest ways to aggregate real-world data from medical device registries.


It will also conduct multidisciplinary workshops to propose a hierarchy of levels of evidence from clinical investigations, as well as educational and training objectives for all stakeholders, to build expertise in regulatory science in Europe. CORE–MD will translate expert scientific and clinical evidence on study designs for evaluating high-risk medical devices into advice for EU regulators, to achieve an appropriate balance between innovation, safety, and effectiveness. A unique collaboration between medical associations, regulatory agencies, notified bodies, academic institutions, patients’ groups, and health technology assessment agencies, will systematically review methodologies for the clinical investigation of high-risk medical devices, recommend how new trial designs can contribute, and advise on methods for aggregating real-world data from medical device registries with experience from clinical practice The consortium is led by the European Society of Cardiology and the European Federation of National Associations of Orthopaedics and Traumatology, and involves all 33 specialist medical associations that are members of the Biomedical Alliance in Europe.

EAP Representative: